Bowling 4 Neutrophils
Team Ella Jewell 2013 in memory of Joeli!
"Dash"ing towards a Cure
Dash was diagnosed with Severe Congenital Neutropenia when he was 6 months old. Soon after he started the only recommended treatment, Neupogen injections, his parents were devastated to find out that his body was not responding. Without neutrophils, Dash was at very high risk for infection and more serious complications. After meeting with numerous Bone Marrow Transplant teams across the US, Dash's parents made the difficult decision for Dash to undergo a bone marrow transplant in January 2013, 6 months after diagnosis and just after his first birthday.
Dash received bone marrow and cord blood from his older brother, Declan and is doing well today. The road to recovery after Bone Marrow Transplant is a long and difficult one. Dash's family is dedicated to support other families dealing with Neutropenia by raising funds for the Ella Jewell Foundation so that research can be done to provide other treatment options and someday, a cure.
Westarity is a not-for-profit organization established by Westward Management, a Chicago based residential property management company. On Saturday, May 18th, Westward supported several employees in their participation in the Chicago Tough Mudder Competition. The race was a 10-12 mile obstacle course designed by British Special Forces to test strength and stamina. All donations generated by the participants supported the Ella Jewell Foundation in support of Neutropenia research. "Dash"ing toward a cure!
Christian Lakis Dinner Event
The Christian Lakis Dinner Event raises over $10,000 dollars for research!!
Christian is 3 years old and diagnosed with Severe Congential Neutropenia. The Lakis family joined forces with the Ella Jewell Foundation and on March 14, 2013 hosted an elegant dinner event at Morton’s The Steakhouse in Great Neck, New York in honor of their son Christian. Christian’s parents, Greg and Jen worked very hard to put together the perfect evening. Their family and friends came out for an amazing event to support the Lakis family and the Ella Jewell Foundation. Congratulations Lakis Family!!!