Supporting Neutropenia Research

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Ella Jewell!

Ella Jewell was born on September 2nd, 2009 with a rare blood disorder, Severe Congenital Neutropenia. Ella’s family feels fortunate because Ella is doing well and responding well to daily GCS-F treatments. Ella’s family wants to share their story and the stories of other families in hope to raise awareness and funds for research and to one day find a cure.

Neutropenia is a very rare blood condition that causes a reduced number or complete lack of Neutrophils. Neutrophils are a type of blood cell that defends the body against bacterial infections. Severe Congenital Neutropenia is generally present at birth. It is usually very severe since Neutrophils are completely absent. Neutrophils will not fully mature in the bone marrow therefore will not be able to fight infections. Severe Congenital Neutropenia patients benefit from GCS-F treatments.

National Neutropenia Network

Just like the Ella Jewell Foundation the NNN is also a nonprofit and is an important resource for patients with Neutropenia. NNN exists to provide support and education resources; connects patients with medical care, mentors and provides a world-class conference with the top physicians specializing in Neutropenia. In order to help mobilize our very small but mighty neutropenia community; EJF invites anyone to participate in the Long Race 4 Tate or create a fundraiser of your own and designate a portion of the proceeds to NNN. We know that the EJF, Long Race4Tate and NNN are going to do amazing things together becasue after all, " Together, we can make a difference".

Long Race 4 Tate

In 2011 the Long Family joined forces with the Ella Jewell Foundation. Tate Long is diagnosed with Neutropenia, he is 2 years old. Tate's family started the Long Race 4 Tate. This ia a great concept and we encourge everyone to join our fundraising efforts by running a race and starting a Team. Ella's and Tate's family have formed a great friendship and are now working together to raise funds for Neutropenia Research. Join the race and make a difference, not only for Tate and Ella but for all children affected by Neutropenia. Thank you!!!