The Ella Jewell Foundation was established in honor or Ella Jewell who was born on September 2, 2009 and shortly after diagnosed with Severe Congenital Neutropenia. Ella’s family is determined to raise awareness in the area of Neutropenia and funds for research. We want families to have the proper resources and options for treatment. Our mission is to make a difference and help fund this much needed research.
The Ella Jewell Foundation was formed in 2010 and as of December 2012, over $100,000 dollars has been raised and donated to the Severe Chronic Neutropenia International Registry. Moving towards a cure and making a difference!!!
President: Kristin McGuinness
Vice President: Robert McGuinness
Secretary: Andrea Boyle
Secretary: Julie Byrne
Treasurer: Cheryl Genovese
Committee Members:
Jinny Garton
Alyssa Genovese
Anthony Genovese
Bridget Genovese
John Lambrosa
Susan Lambrosa
Gretchen Long
Bob McGuinness
Debbie McGuinness
John McGuinness
Brittany Mothershead
Victoria Taylor
E-mail: admin@ellajewellfoundation.com